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U.S. rare disease patient feelings as of 2015

This statistic presents the feelings of rare disease patients in the U.S. as of 2015, compared with other patients. It was found that 47 percent of rare disease patients feel they are worn out all or most of the time, compared to just 21 percent of respondents from the rest of the U.S. population.

Feelings of patients with rare diseases in the U.S. compared to other patients as of 2015

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Source

Release date

February 2016

Region

United States

Survey time period

2015

Supplementary notes

Patients with the following rare diseases responded to NHWS: lupus nephritis, cystic fibrosis, hemophilia A, hemophilia B, connective tissue disease, ITP, Paget’s disease, and Sjogren’s syndrome.

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