Endometriosis common diagnoses U.S. 2021

In 2021, of the women surveyed with a formal diagnosis for endometriosis, over half had been diagnosed with deep infiltrative endometriosis*, which has been previously thought to be quite rare. This statistic shows the percentage of women with endometriosis in the United States with select types in 2021.

Percentage of women with endometriosis in the United States with select types in 2021

Characteristic	Percentage of women
Deep infiltrative endometriosis	51%
Endometriomas or chocolate cysts	51%
Stage IV endometriosis	36%
Adenomyosis	31%
Not sure of current stage	27%

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Release date

July 2021

More information

Region

United States

Survey time period

February to March 2021

Number of respondents

1,027 respondents

Special properties

85 percent have a formal diagnosis for endometriosis

Method of interview

Online survey

Supplementary notes

* Endometriosis is a condition in which tissue like the lining of a woman’s uterus grows outside the uterus. The tissue reflects the woman’s menstrual cycle. It thickens each month, then breaks down and bleeds during a woman’s period. The blood cannot escape from the body and can lead to cysts, lesions or sores, pain, and infertility.
Deep infiltrating endometriosis occurs when endometrial tissue invades 5 or more millimeters below the surface of the peritoneum, the lining of the space inside the abdomen. There, it may be deep within the bowel, bladder, vagina, or other organs. Deep infiltrating endometriosis also is called extrapelvic endometriosis because it may happen in any organ outside the pelvis.

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